Good News is, You Don’t Have Any of the Genetic Variants of EDS (Ehlers Danlos Syndrome)

“Good news is you don’t have any of the genetic variants of EDS (Ehlers Danlos Syndrome) unfortunately you did come back positive for BRCA2”.
I am What is Known as a Previvor

My name is Joanne Ameruoso. I am what is known as a Previvor. After having a first-degree relative, (Grandmother, Aunt, and Mother) and losing my grandmother and then my Mother in a very traumatic way to breast cancer, that was the day I decided I was going to be proactive.
Well, I Have a Heck of a Story

Well, I have a heck of a story! My name is Toby Gopen, I am 66 now.
My Cancer Journey Started Before I Was Diagnosed Myself

My cancer journey started before I was diagnosed myself. I watched my mom fight for he
In 2014 I Found Out I Was BRCA Positive

I have known about being BRCA-1 since 2014.
Finding My Purpose and Healing at the Same Time

On January 7, 2020, I was diagnosed with breast cancer. I know no one expects to be diagnosed with cancer, but for me, all I could think was that it was really ruining my year. I was going to turn 50 in September and had plans to celebrate each month. From a food and wine show in Arizona, to Disney, to Vegas, to a family cruise.